Who wasn’t moved and inspired by Hannah Deacon on Loose Women cannabis oil story this week?!
Hannah Deacon on the Loose Women cannabis debate, will it ever be legal in the UK?!
It was not the first time we had heard her story. Certainly not the first time the Loose Women cannabis debate has raged on!
It was Loose Women on Tuesday, but she spoke passionately and eloquently on LBC Radio a couple of weeks ago about her six year old son Alfie, his incredibly rare condition and her anguish at not being able to give him cannabis oil legally in the UK to help reduce and ultimately eliminate his seizures.
She has even taken her campaign along with Sir Patrick Stewart, backed by MPs peers and scientists, to Downing Street, delivering a petition with more than 370,000 signatures to back the family’s pleas for a licence to allow Alfie to take cannabis oil in Britain. Doctors’ worries about cannabis research have so far stopped the six-year-old boy from receiving the treatment that his mother believes will transform his life. Those concerns are around cannabis oil containing the chemical THCA which is illegal in the UK.
Cannabis oil is a substance extracted from the cannabis plant by steam distillation. It contains THC which is the psychoactive component in cannabis that give users a high. And that is the sticking point when it comes to governments around the world licensing it. There has been some research into the impact of combining cannabinoids with other cancer treatments, like chemotherapy, but while cannabis is classified as a schedule one drug, that research is limited.
Alfie has a rare form of epilepsy called PCDH19. It usually only affects girls. In fact there are only 9 boys worldwide who have it. Each one of them suffers a different strain, so he is a unique boy with a unique condition. He was having up to 30 fits a day before his parents were able to get hold of cannabis oil in the Netherlands. It was an incredibly frightening time. Even then they were following what Deacon calls “normal protocol”, but Alfie was not getting any better. Intravenous steroids did work in so far as the seizures stopped for a time, but each treatment was an ordeal and there were worries that in the longterm, these could do more damage than good.
“In December 2016 we were in a room with doctors, nurses, me and my partner Drew, and we had five people holding him down trying to get a line into him… and they did it about ten times. He was like a rabid dog, screaming, his eyes coming out of his head and something inside me thought, that is it, I am not doing this anymore” she said.
Deacon was determined to find an alternative treatment to those intravenous steroids that she believes would ultimately make him psychotic. She had “seen a bit online” and it was through one of her support groups for the families and teams close to and affected by PCDH19 that she started reading about cannabis oil and the great results some people in America were having with medicinal cannabis for their children.
She then did what we advise all our CanaXen customers to do: immersed herself in learning about cannabis and its potential medicinal and therapeutic benefits. She asked questions, spoke to parents, quizzed professionals.
“I did lots and lots of research online and it just kept coming up as safe and effective” she said.
Watton mum Callie Blackwell talks about saving her son with Loose Women cannabis discussion
Back in October last year the incredible story of Deryn Blackwell made its way on to the Loose Women cannabis debate.
Callie Blackwell joined Ruth Langsfield, Coleen Nolan, Jane Moore and Gloria Hunniford OBE on the show along with her son Deryn on Monday, October 23.
Mrs Blackwell was there to discuss why she thinks cannabis should be legalised for medical use as well as her book The Boy in 7 Billion.
The Loose Women cannabis oil saga has some history!
The Loose Women asked Deacon if she knew Callie Blackwell, who featured on the show last year to discuss why she thinks cannabis should be legalised for medical use in the UK. Blackwell has written a book – The Boy in 7 Billion – detailing her son Deryn’s battle with cancer and his miracle recovery. Deryn had leukaemia teamed with another rare form of cancer: doctors believed he was the only person in the world to be fighting both those forms of cancer at the same time. After four bone marrow transplants and numerous infections he was taken to hospice and told he only had days to live. The aggressive treatments to kill the cancer had destroyed his immune system. But he both baffled and delighted everyone and made a miraculous recovery. His mother credits cannabis oil. She controversially and secretly gave him cannabis in liquid form. Callie Blackwell believes the drug saved her son’s life. He is now training to be a vegan chef.
While Callie Blackwell got hold of cannabis oil in secret, Hannah Deacon is determined to take the legal route. That meant seeking treatment in the Netherlands where doctors can prescribe the drug legally. It was expensive and meant some serious fundraising to get Alfie there.
“We didn’t want to go without support from the UK so we got advice from our Doctor. His words were, you have no choice, because he knew there was nothing else to be done other than steroids that would eventually do very bad damage to him. We found a paediatric neurologist at a children’s hospital, she prescribed the medicine which is made by a company as pharmaceutical grade medicine, and within six weeks he was having one seizure a month. It was just amazing” she said.
There have been no formal scientific studies which show that alternative therapies, like cannabis oil, can cure cancer. However, the anecdotal evidence is overwhelmingly positive and encouraging.
Gone to Pot?
Loose Women’s Linda Robson, who took part in TV series “Gone to Pot” talked her time in America where she saw how cannabis is grown specifically for medical purposes and had a story of her own about a poorly little girl whose seizures significantly reduced once she started taking cannabis oil regularly. She and the other Loose Women cannabis distinguished the difference between prescribed cannabis and what can be bought on the high street.
The Loose Woman cannabis discussion with Janet Street-Porter clarified that what is readily available in UK stores and online are products that a distinct from cannabis oil because they contain other cannabinoids containing zero (or a trace of) THC. She means products like CBD oil.
“They’ve isolated the cannabinoids, the stuff that is on sale in health food stores. That is being researched at the moment for joint relief and to help people deal with pain. But the THC that you got in the Netherlands is illegal and the UK Government are dragging their feet” Street-Porter said.
Still a lot to learn with Loose Women cannabis oil
Hannah Deacon thinks we have a lot to learn. “There is a really important discussion about education here. There is a lot of people who mix up recreational use with medical use. The drugs that my son is on – anti epileptics, steroids, they will make him psychotic, they will make him mentally ill. Three drops of THC a day … is all it takes” she said.
Deacon added that her son was also on a big dose of CBD.
“It binds the receptors in your brain and it makes your seizure threshold be a lot higher, that is basically how it works in a nutshell” she said.
When Loose Woman Stacey Solomon asked if she was worried about any side effects from cannabis oil and CBD, Deacon said
“I worry a lot more about the drugs he is on at the moment which might kill him and make him psychotic than three drops of THC”.
How optimistic is she that the government will grant Alfie a licence for the drug, while the Home Office is saying it needs more testing?
“The only way that this drug will get more testing is if we reschedule it, because at the moment pharmaceutical companies can’t do research into it, it is very very difficult. So that needs to change. But I am confident. We have met with the Home Office, our doctors are very supportive, because people realise that this oil could change people’s lives” she said.
What we do…
While we are following campaigns like this one to make cannabis oil legal, with keen interest, CanaXen CBD oil is legal.
More and more people are taking CBD just to feel good, feel better, and ward away bugs and blues.
CBD – or cannabidiol – is one of around 80 different natural cannabinoids that can be harvested from the cannabis plant. CBD is legal everywhere and doesn’t make you high. Repeat: legal everywhere and does not make you high. Numerous anecdotal reports and some scientific studies suggest CBD is a wonder compound that reduces inflammation, lessens pain and anxiety, controls seizures, and has other healing or symptom-easing powers.
At CanaXen we’re rubbing in CBD Oil, vaping and taking tinctures as a 100% natural supplement.
We are not insinuating our CBD oils are the same as Alfie’s oil – his oil contains THCA as well as CBD and our products do not.
Until next time! We eagerly await the next Loose Women Cannabis debate!
CanaXen is a UK-based supplier and manufacturer of hemp-derived phytocannabinoids. At CanaXen we extract CBD from hemp, which is a strain of cannabis, using the CO² extraction or decarboxylation method, considered the most high tech and cleanest process. The advantage of this technique is that the end product is the purest form of CBD oil which is highly potent and chemical-free.
Loose Women Cannabis Debate by J. Mann
Loose Women cannabis oil debate